This was the lesson I learned on Day 18. However, the lesson needed to sink in even further because at 7:30 this morning, Simon was not doing well. He was acting very lethargic and clingy. He did not have his usual pep. I called my pediatrician and she recommended going to the ER just in case he aspirated during his choking episode. I had no reservations about bringing him so I guess it was my mother's intuition that made me feel something was not right. We checked into the small hospital out here at the beach and after a series of x-rays the doctor came in with the bad news: one of his lungs looked blocked and was not exhaling completely. The only way to test this was to do a Flouroscopy so they could actually see his lungs moving. And sure enough the left lung was not moving. On these xrays they could actually see anything in the lung, but they assumed something was there. My husband and mother met us before Simon and I left in the ambulance and brought me some GF-CF food to get me through the next few hours. I hadn't really eaten breakfast and now I would be in the ambulance during lunchtime.
We arrived at the hospital in Pensacola, Florida 2 hours later. They put us in our room in the ER and then NO ONE came back into that room for almost 1 1/2 hours! When you are alone in a hospital with a baby, there is not much you can get done. I couldn't leave him to go to the bathroom, get on the computer, go yell at nurses, etc. because I had to stay with him the whole time. Finally the doctor showed up and after seeing his xray, called the specialist. My parents showed up around the same time the specialist showed up. Let me just say that Dr. Pennington's bedside manner was not the best. Pretty much the first thing he said when he walked in the room was "This is a very dangerous surgery and there is a chance your son can die." Well, that is not exactly the most comforting thing a doctor can tell you so you can put your trust in him. So me and my mom both started crying at that point. That was the first time I lost it and it didn't stop until the procedure was almost over. The doctor said they would put him to sleep and then insert a scope down his throat so they could see what was blocking his lung. Then he would attempt to take it out.
After the procedure that doctor with the wonderful bedside manner, briefly stuck his head into the recovery room and said he didn't see anything there. The only thing he found was some really thick mucus that he sucked out and that hopefully will prevent any pneumonia for happening later. He still wanted us to stay the night to monitor him and make sure he didn't get a fever or anything. So finally at 7:30, Simon and I went to our room for the night. My mother got me a salad from Subway (which was ok, but apparantly the person making the salad had no clue what it meant to make a GF salad and cut the meat on the same board as the meat. My mother made him recut it on some paper.) and some fruit. Then we attempted to sleep for the night.
Back at the condo, Daniel was living on his typical diet of pancakes and pb&j sandwiches and missing his mommy.
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